Trip to Children’s Hospital tomorrow…

Hi Everyone!

Praise the Lord Evie’s numbers were up yesterday.  As of yesterday her neutrophil number was .33, it doubled from two days prior.  Once she hits the .5 mark she will only have ‘Neutropenia’ and not ‘Severe Neutropenia’.  We’ll take it!  A step in the right direction!

First Eye Exam
Evie has her first eye exam tomorrow at Children’s Hospital because of the drug Vigabatrin that she is on.  Vigabatrin comes with a risk of partial blindness in the peripheral vision.  They perform a special eye exam to get a benchmark so that in the months to come they can re-test her vision and make sure things aren’t changing.  We’ve spoken with the office already and they are aware of her compromised condition and have assured me they will take all necessary precautions.  Please pray this goes smoothly…

10 Months Old and Teething
Evie is 10 months old today and she cut her first tooth!  She’s been a little upset today, poor little thing has sore gums :(   It’s amazing how watching her go through something like teething brings me so much joy, because that’s what 10 month old babies do!!!

It’s all in the preparation!
When I think of the battles I’ve read about in the Bible it’s not the size or strength of an army that makes them win, it’s the preparation that leads to victory!  To victory and freedom!  As I entered the hospital with Evie for the second time here in town I found myself spiritually unready.  Though my artillery was the same, the lack of preparation brought struggles.  Having had such a time of intense study and closeness with the Holy Spirit before heading to the hospital the first time I found myself shaken, but not moved.  This time around I fought fear, anxiety, pride, you name it…  As Evie found herself pricked by the phlebotomist after pricking herself I fought feelings of anger and judgment.  I sought what I called ‘justice’ when really I was looking for pity for the situation we found ourselves in.  It took quite a few days for me to realize what was going on when I sought the Lord.  He was so gracious and in it all gave me opportunity to share His goodness with others.  He even brought me a woman, who drew Evelyn’s blood, that shared Christ with me!  A reminder of what it is all about!

Oh Lord I pray for your forgiveness.  You’ve told us to be ready, to dress ourselves in your character and to conduct ourselves in your likeness so that the people of this world may know who you truly are.  Thank you for being such a gracious God that you would still allow me the opportunity to rise above and share the Good News!  Thank you for protecting Evelyn from any further infection or sickness.  Thank you for taking her fever away.  I pray for continued protection for her as we head to Children’s Hospital tomorrow and continued growth in her immune system!

Love & Blessings to you all,

Jill

 

 

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Neutrophil is heading in the right direction!

Just a quick post – Evie’s neutrophil numbers went from .14 (which equals 140) to .33 (330).  Thank you Jesus!!

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Update on Evelyn…

Hello Everyone,

Just a few weeks ago I was telling Todd that I was afraid that all the Lord had taught me during this time would not ‘stick’, that the things of this world, all vying for our attention, would distract me from the things of the Lord and all He had taught me. I was praying that I would never see with my old set of eyes and that the new perspective the Lord had given me would remain. Well, we are back in the hospital tending to Evelyn and perspective has once again knocked on our front door.

We were on a vacation. This was a big step for me to take Evie out of the home, but I had talked with the lodge, they had promised they did a thorough cleaning. And I was coming armed with disinfectant wipes to sterilize the place before we brought Evelyn through the front door.

As we arrived I took her out of her car seat and she felt very warm. I told Todd I thought she had a fever and he went off to the nearby pharmacy and bought Tylenol and a thermometer. Her temperature was 102.0 and we had been instructed that anything over 100.4 warranted a call to the primary care physician.

After many phone calls to the doctor, and treating Evie with Tylenol over night, we drove back home on Saturday. We have been at the Hospital since then. Upon arrival they took Evelyn’s blood and during that procedure the phlebotomist pricked herself and then Evelyn, contaminating Evie with her own blood. This is one more thing we’ve needed to over come… trusting God that Evelyn was not exposed to any harmful diseases when this contamination happened. While here at the hospital she was treated with strong antibiotics to reduce the fever she had and she was monitored. Evelyn’s fever has been gone for almost three days. However, in the process of treating her fever, some blood work revealed a very low level of white blood cells. It also revealed that one type of white blood cells that are called neutrophil were measuring at 0.03. This reading of .03 equals 30 neutrophil, as I understand it. A normal range of a healthy person is between approximately 1.5 to 7.0 which equals 1500 to 7000. To have a neutrophil level of .03 = 30, is considered a condition called ‘Severe Nuetropenia’. Having ‘Severe Nuetropenia’ means that Evelyn cannot fight any type of infection at all. Over the first few days here at the hospital her levels dropped to zero. We found blood work that was performed on Evie back while she was on ACTH, which suppressed her immune system, and while on ACTH her neutrophil level was 3.0 which is 3000.

As of this morning the neutrophil raised from zero to 50… still much to go, but we are expectant as we wait on the Lord. The plan is to stay here for a few more days while her numbers increase and then to go home and test weekly. During our time home we will have to be even more diligent about germs and keeping Evie safe from germs. Her immune system is worse than it was on ACTH.

Thank you all for your continued prayers. My sweet little one is calling and I must run to her aid!

Love to you all,

Jill

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Joy, such unspeakable Joy!

I can’t believe two weeks have past since my last post… time flies when you are in awe of the Lord! I look at her, and at Callen and Annabelle and Todd, and I really can’t believe all that we’ve gone through over the last months…

God is doing such a fantastic work in our family, He has given me a new set of eyes. Eyes to let go of the things of this world that don’t matter. Eyes to see to the heart of issues that rise up in our home. Such an appreciation I have for my family, for each moment with them, it’s like a gift, everyday. It should have always been like this, but the distractions of life allowed the truth to seem blurry.

When I rock Evie at night and she rubs her little face up against mine and buries her face in my neck I simply melt… Her little hands grab at my hair and my cheeks and she smiles – could there be anything more precious! The other day I fed her a bottle and she looked at me with a big grin and spit up a Huge amount all over me…. it got in my hair, my shirt, my pants, my socks and I was elated! I laughed, I squeezed her, I kissed her and I praised the Lord that I have this little baby who will spit up all over me!

The other day I went for a walk with Evelyn and I came upon an old house. It was a small cape, falling apart in many places. It was dark red and the yard was over grown with patches of dirt and crab grass. The shrubs were out of control and the trees in the front yard were jagged and looked as though they would not likely bloom for much longer… Right smack dab in the middle of this seemingly disastrous yard was a small patch of beautiful yellow daffodils. These daffodils didn’t care that they were blooming in a desolate place. These daffodils were just as beautiful as the daffodils you’d find on a nicely manicured lawn. Daffodils are meant to look a certain way, they grow a certain way, regardless of where they are put… My prayer is, that through this situation, through these circumstances, our family will grow as the Lord has planned and that we will walk in the plan He has set forth for our family, regardless of what is around us and what we can see with our eyes.

Thank you for your continued prayers, Evelyn is doing absolutely wonderful, getting stronger each day. As far as her immune system, other than the six month estimated time line, no one can give us an exact ‘back to normal’ immune system time frame, so we just pray for wisdom in this.

I continue to pray for peace and increased trust in the Lord each day. Now that Evelyn has had a seizure disorder this puts her into the category more at risk for seizure development with high fevers, so in this I must pray and trust God for her protection for now and years to come. We are also going to have to decide how to proceed with vaccinations. There have been some studies linking infantile spasms with a vaccine called DTaP (Diphtheria & Tetanus Toxoids & Acellular Pertussis (vaccine)). The studies I read attributed the infantile spasms to the DTaP vaccine if the child had normal development until time of diagnosis, if all tests including MRI, Spinal Tap, etc came back normal and if the onset of symptoms for the infantile spasms occurred within approximately 1 week from the time of the injection. Some studies said within a week, others said 10 days. Evelyn fits all of this criteria. As best as I can approximate, her seizures began on or around February 1st and her DTaP shot was given on January 21st. When we found ourselves in the Emergency Room in the third week of February and when asked I had estimated that we’d seen the awkward ‘eye tracking’ for about three weeks – give or take. Three weeks would have put us at February 1st (11 days from the vaccine injection), but it is quite likely it was a few days before Feb 1st which would put Evie even closer to the time of vaccination. Even the CDC (Center for Disease Control) says to not give the DTaP any more if a seizure disorder began within one week of an injection. I found out about this proposed link between IS and the DTaP by ‘chance’, reading a blog post one day, and believing that everything is spiritual – I believe this was NOT by chance and that God is instructing me to seek wisdom in this area of vaccines and pray fervently before giving her any more. Please pray with us, it is a big decision to decide to withhold certain vaccines.

We also started Evelyn on a new hypoallergenic formula because we were noticing a trend of hives after some formula feedings. She seems to be doing better, a few hives, but less than before. Praying that the Lord will reveal the root of this for sure.

Callen and Annabelle are really coming along. We’ve had a rough few weeks and we are still working through some emotions that have come up during this time, but I am seeing God move! He is opening the lines of communication between me and my kids and we are having breakthroughs that really matter. Forget the ‘small stuff’ – we are going in deep, getting to the root of problems and plucking them from the garden! God is in the business of wholeness and restoration and my kids are becoming amazing children of God through this process!

Evelyn has adjusted just fine to the higher dose of the medicine. The doctor let us ‘up it’ slowly so that was great. She started saying yaya, gaga, and dada this week and it is the absolute sweetest sound in the world. She is giggling, smiling, rolling over, sitting longer once placed in a sitting position, grabbing toys and jumping in her ExerSaucer! Tomorrow Todd is going to put a chin-up bar in one of the doorways entering the kitchen so I can put a larger style baby swing in the kitchen for when I’m cooking – She’s going to love it!

I started back at the Holy Spirit class I was taking before all of this happened. This class, this God, the only True God, is what has sustained me and I miss time with Him so much. As I picked up my notes to begin again I saw the very last note I had written prior to going to the Hospital with Evelyn and prior to knowing anything was going on, it said:

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It’s embarrassing to say but I never really knew what anointing meant? I basically had surmised that people who were anointed were ‘special’ to God and that it was a type of person rather than an experiential anointing. I am realizing so much time has been lost, wasting time, not truly getting to know what it is I’ve said I believed.
It’s exciting to think that God will anoint me to fulfill a purpose of His. That I can walk in His Power, anointed, to bring about changed lives through Christ!
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In all of this, He knew what I was about to come against. He has anointed me to fulfill His purposes and I am blessed!

Love to you all,
Jill

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Thank you Jesus for healing our daughter!

Oh Lord, thank you. Lord thank you that you have sustained me every day and in every moment of this journey thus far. I know that this journey is not over, but I claim the victory today! For my God is the God of all, King of all and He has set us free and healed my daughter.

For many are called, but few are chosen
—Matthew 22:14, KJV

Oh Lord, thank you for the call upon my heart. Thank you for your gracious invitation to sup with you, to be called a part of your family, to be called your own. Your word says that if Your people will humble themselves and pray, then You will hear from heaven. Thank You gracious Father for hearing our prayers and healing our sweet daughter.

Mark 10:52 says: “Go,” said Jesus, “your faith has healed you.” Immediately he received his sight and followed Jesus along the road.

My prayer today is that this faith that has been stirred up in our home will continue to grow and bloom. There is so much freedom in a walk with the Lord Jesus. He has gone before me and will help us every step of the way.

Praise you Lord God!

Our Day Today…

Today is 13 days seizure free on the Vigabatrin! I woke up at 4:55am, got myself ready and then woke up Evie at 5:15 to prepare her to go to Boston. My dad came with me and drove us down.

Evelyn was such a good girl. She was so patient for her EEG.  I had been feeling so confident for the last few days and the few moments before they turned the EEG on I felt sick to my stomach.   I didn’t know exactly what I was looking at, but I knew it was ‘better’ from the moment she turned the EEG machine on.  The tech of course couldn’t tell me anything… but I was very hopeful instantly!  Once we were able to meet with the doctor she confirmed that the EEG was wonderful!  She said she saw one small spike, but otherwise was perfect.  She said “I couldn’t have asked for a better EEG!”  I praised the Lord for healing Evelyn and the doctor said to me… “We think it is the drugs that heal these children, but it work for some and not at all for others, I agree that there must be something more, there must be some grace.”

It is only by the grace of God that our daughter is smiling again, that she is cooing, sitting up, learning, smiling, and that her brain has come into complete alignment.

Thank you for your continued prayers.  They are going up on Evelyn’s Vigabatrin to a standard dosage (she was on a very low dose) to keep things at bay.  Please pray this does not affect her development or make her too tired.  She will be on this medicine for 6 months to a year.  Our next follow up in Boston is in two months.  The doctor said that when we wean her off of the drug we will want to watch for a new development of different types of childhood seizures.  Apparently this happens often for infantile spasm patients.  However – I’m believing a healing is a healing and our girl will never have another seizure again!!! Please pray and believe with us!  We are also going to have to make some decisions in the next year or so about vaccinations, I’ll explain more later, but we are seeking the Lord’s direction in this as well.

The doctor said that in a few weeks her immune system would start to rebuild itself… truly not getting back to ‘perfect’ for 6 months from her taking the ACTH.  She said we need to continue to watch for infections and try to keep her away from germs as much as we can.  To those who don’t know, her immune system being compromised is not due to her condition of infantile spasms, it is due to the medicine she just completed.  She has finally finished the weaning schedule and had her last shot this past Friday.  This new drug does not have the side effect of harming her immune system which is wonderful.  Please also continue to pray that the one main side effect of this drug, partial blindness, does not happen to our sweet girl.

We love you all!

What else can be said, but… Lord you are amazing and faithful!!!!! Thank You!

Love,

Jill & the family!

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8 Days Seizure Free!

Today is 8 days in a row that Evie has been seizure free!! She has been amazing – babbling, smiling like crazy, playing and simply being her sweet self!

Each day I am completely in awe of what she learns to do in just a day… She’s picking up toys, banging them on her high chair. She’s pushing her body up off the floor again, very well… I don’t think it will be long before she tries to get up on those chubby knees!

Since we can’t bring Evelyn to church right now, Todd and I have decided to take turns each week going with Callen and Annabelle. This past Sunday was my first Sunday back since all of this happened. I kept saying to myself the entire ride there “I’m fine, I’m totally fine.” Then, as we sang the first song of worship to the Lord, the Lord told me to go meet Him at the altar, and so I did. Tears flowing down my face, releasing the pain and fear I have been holding on to. I was so encouraged as my sisters in Christ surrounded me and prayed for me. Thank you Lord for this body of believers and for all of my family and friends who are joining me in prayer. We are not meant to walk this journey alone, thank you for this provision.

While at church, at the altar, a lovely woman whom I care for dearly came to me and shared with me that her daughter had struggled with a serious medical condition as a child and that she had a dream and in her dream her daughter was well. At that moment I prayed that the Lord would give me a dream. After leaving church on Sunday I was delighted to come home and be with Evie since I don’t spend much time away from her. I did not think about that prayer until the next morning when I casually started telling the visiting nurse about a dream I had where Evie was happily playing and crawling. In that moment I said “Oh my goodness, I got my dream!!!” I am so grateful to the Lord that He is so personal that He would touch me and send me this dream. Thank you Lord that you love me this much!

I got word today that Evelyn’s lactic acid levels came back normal! This is wonderful! Praise the Lord! One more step in the right direction!!! I still don’t know any more about the genetic test that came back abnormal, but we do have an appointment with a genetic counselor in Boston on the 28th.

I spoke with Evelyn’s neurologist that is here at home today, she is so encouraging and I consider her a great friend.

Also, Evie starts therapy next Friday, to begin working on the areas that are lacking due to the medicines she has taken. Monday is her EEG in Boston, my dad is going with me, we will leave at 5:45 am!! I am looking forward to this day, for a great report!!

Thank you all so much, I am so encouraged by your prayers and your uplifting words. And I truly thank you for letting me share this journey with you, it helps me walk it, and I appreciate your friendships.

Love,
Jill

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My baby girl is here again!!!

There is nothing like her smile… seeing her glow and smile again brings tears to my eyes and such a sense of peace…

Evelyn has completed 7 days on Vigabatrin as of this evening. Over the last 5 days, she has only had one 10 minute episode that had about 4-5 seizures and that was on Tuesday afternoon. So, 4 out of the last 5 days she has been seizure free!!! Praise the Lord!!!

When I’m walking in fear I find myself afraid to be excited, almost as if I’m acting indifferent to it… the last month and a half have been the hardest times of my life and I’m constantly having to battle the fear of disappointment… But faith however is not afraid to rejoice! And so I do! Thank you Jesus for healing my sweet girl! Thank you that every day I have with her is a gift! I don’t know how the rest of this journey is going to play out, I don’t know the specifics, but I do know the promise – You are faithful!

I was laying in bed with her this morning and she was gazing up at me, making wonderful eye contact, content to just be in my arms, smiling from ear to ear at me. It’s like I have a whole new baby, my baby, the one this disease had tried to take – but my God is bigger, and my baby girl is here again!

She was babbling, smiling, playing with toys and even laughing out loud… Last night, Todd put Evie to bed. As he came out of the room he called me over and the two of us sat in such delight as we listened to her cackle and laugh out loud, by her self, to fall asleep. She would laugh, then pause, then laugh, then pause… I know Jesus was in there playing with her, making her laugh, comforting her. To see her this happy, amidst all the pain she has had to endure over the last month, was indescribable.  Tears of joy silently fell down my face.

Thank you for all your continued prayers, our Father hears them and He answers!!  Evelyn has some bloodwork to do tomorrow.  They said some of her work came back with elevated lactic acid and they want to confirm that it is or isn’t elevated.  If it is elevated then their is a cause and it’s the cause that could be a problem.  Please pray that this will not be elevated during this second test.  They also found she was deficient in B12, if so, it can be easily remedied with a vitamin.   The last finding they discovered was that she has a deletion in one of her chromosomes and they have setup an appointment with a genetic counselor so that they can explain this more.  The Doctor said she doesn’t think this deletion is related to the infantile spasms and that the only thing they have seen with this deletion is some muscle issues.  That is all I know and I really don’t understand it fully.  I’ll post more when I know more.  Her next EEG is April 11th, this will let us see if the progress we are seeing in her reduced seizures also extends to the EEG – our prayer is that the hypssarythmia pattern is gone and that her EEG has normalized!!

I’m sitting on the couch looking at Evelyn asleep in her swing… her chubby cheeks and sweet little hands folded on her belly are so beautiful.  She is perfect.

Love,

Jill

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Vigabatrin, Teething, Cold… oh my…

Despite our efforts to keep all germs away, Evie has a cold :( She’s really being a trooper though. So far, praise the Lord, no fever! Please pray that this cold does not settle in anywhere and cause infection. A fever would mean another stay at the hospital.

Today Evelyn has been such a delight… I never thought I would look forward to normal baby crankiness from teething and having a cold. She’s jumping in her ExerSaucer right now, babbling / whining, and sucking on her fingers while gallons of drool drip down her face…

Though her seizures last literally only one to two seconds and are very easily missed, I have not physically seen any today! Though I cannot look at her constantly, no matter what way you look at it – this is progress! It’s just about 6:00 and we haven’t had a day like today in over a month… Praise the Lord! It is my prayer that today remains a seizure-free day and the days to follow are too… I feel like I’m on the edge of my seat, staring at her face… this is where my trust must continue to be in the Lord. It is impossible for me to look at her eyes, every day, all day, I must rest in knowing that when the Lord heals her, He heals her, whether I’m looking or not! I told her today that whatever day is her ‘seizure free’ day, when her healing comes, we will make it a holiday and celebrate God’s goodness every year!

She has been on the Vigabatrin for three days now. The doctor’s plans are to have her on 250mg twice a day and work with that dosing until we see the desired results. A baby can be on up to 1000mg twice a day… Right now she is only starting and is on just the 250mg once a day, we are supposed to add the second daily dose in 4 days with her continuing on the 250mg twice a day…

We have been through so much and I’m learning to take things slow, follow through, and wait on the Lord. I feel like the Vigabatrin is working clinically (clinically being what we can see visually, her actual seizures), the EEG on April 11th will let us know how she is doing ‘inside’.

When I say ‘inside’, I mean this: One aspect of infantile spasms is called ‘Hypsarrhythmia’. Hypsarrhythmia is a very chaotic and disorganized brain wave behavior with no recognizable pattern. It’s this chaotic pattern that is typically associated with mental retardation. There are many seizure medications that work with calming the brain and reducing or eliminating seizures. However their are really only two main drug types that attempt to eliminate hypsarrhythmia and normalize brain waves. ACTH, the drug we already tried, and this drug that we are on, Vigabatrin, is the other.

Todd was able to go to church today and he came home very refreshed and loved… He said it was wonderful to be around our church family again. The kids had a great time too… I asked Callen if everyone missed him, he said “They did mom… they didn’t say they missed me, but when I came in the room they were all shouting ‘Callen, Callen’” It was great for me to see the love that is being poured out not just on Todd and I, but the kids too…

Thank you again to everyone who has blessed us with your help and your prayers. Having nights each week where I can just focus on Evie and the kids and not have to make a meal has meant so much…

We love you all so much! I will write tomorrow night and let you know how her day goes…

Love,
Jill

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Vigabatrin Tomorrow…

Having not seen a significant change over the last few days, we will proceed with Vigabatrin tomorrow.  I am filled with faith, and battling fear all at the same time.  I’m afraid to have faith, afraid to be disappointed.  Thankfully I know – FEAR is not of GOD!  FAITH is of GOD!

The Lord put it on my heart to write Evelyn a letter… to write it in faith, that she will one day read it… when the Lord asks us of something, we ought to listen…

My Letter to Evelyn

My Dearest Evelyn,

From the moment I found out I was pregnant with you I felt ‘life’!  I felt the life that God was growing inside my womb and I felt a new life that I was beginning as I entered into a deeper walk with the Lord.  This new walk with the Lord came as you were being prepared to be a part of our family.  As you were being prepared for us, God had been preparing me to be your mother.  He was preparing me even before I was able to hold you and to look into your eyes.

From the moment I knew that you were to be a part of our family I fell instantly in love with you, never to be the same.  You were destined to change our family and to change our lives.  I wonder if you could ever know the depths of the plans God has for your life.  You have brought love, laughter, tears, joy, peace…  You have caused our family to slow down, take our eyes off the trivial things of this world and fix our eyes on the things above.  You have completely melted my heart and shown me how important it is to have love, the kind of love that only comes from the Father.

You have been the happiest baby I have ever known and have blessed us dearly, every single day.  When you were 7 months old we noticed something different was happening and within a few days found out that you had something called infantile spasms.  As your condition was explained, it seemed like the worst day of our lives, our hearts were breaking… Only we didn’t realize that rather than an end to a perfect picture… it was the beginning of a journey.  The Lord is bringing our entire family on a journey of faith.  My heart is saddened to see you go through everything you are enduring.  But, my sweet Evelyn, you must know that the Lord God, creator of the Heavens and the Earth is using you to change lives, He is with you, you are not alone.  You have eternal purpose that is adding souls to the Lamb’s Book of Life.  You are softening hard hearts, bringing the lost to prayer, causing knees to bow and hands to be lifted up into Heaven.  You have been made for such a time is this, and you are perfectly and wonderfully made.

I write you this letter because I know you will read it…  it is for you to read, because I believe in faith that God has already healed you.  He has gone before our family and is waiting on the other side of this journey with open arms.  The Lord has brought our family to a place where we must rely on His power and His presence to take us through this journey.

My dearest Evelyn, In the name of Jesus Christ of Nazareth, I claim healing over your body, over your life.  You will Read, you will Walk, you will Talk, you will Pray, you will Praise the Lord God with all your heart.

Thank you Lord, that we will over come this adversity, this trial, being ever changed and our faith increased…  Thank you that you will bring us through to the other side and we will all Glorify your name.

My dearest Evelyn, you truly are a miracle…

Love,

Mom

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Latest Plan…

Todd and I met today with Dr. Harini again, she is such a wonderful doctor, she talked with Todd and I and answered our questions for over an hour and a half… she’s one of the top pediatric neurologists in the country and she took the time to care for Evie like she was her own… we were so blessed…

With the exception of a few great days last week, Evelyn is still having between 10 to 15 seizures a day (that I am noticing, quite sure I am not catching them all). With that said, unless things change between now and Thursday, Friday she will begin Vigabatrin.

We feel we asked Dr. Harini every possible question that was on our minds and hearts and feel as comfortable as one can moving forward with the Vigabatrin. We continue to pray without ceasing that we will find and answer for our precious Evie and we pray that this medicine will be it.

Evelyn had her blood drawn today again to fill about 7 viles for testing, she was a trooper… They even had to tape on a little bag to catch her potty and the woman who was doing her testing said, “poor thing, I scared the pee right out of her”… in all of this, we find laughter, taking things one day at a time…

We are grateful that the Lord has protected Evelyn through all of these drugs… she’s been on three anti epileptic drugs and has yet to have a single major side effect. Even on ACTH she did not have any of the major side effects… Thank you heavenly Father for protecting her during this time.

Lord, I know you know how much I love my little girl, how much my heart breaks to see her go through all of these tests… and most of all, I know You love her even more than I do – which is hard to even imagine… I give her to you Lord, please heal her sweet body. As your word calls us to come into alignment with all that you are, I pray that the brain waves within Evie’s body will come into alignment, into perfect peace.

Thank you all for your support – we love you so much.
Love,
Jill

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